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Two in a Row

balanced translocation two miscarriages in a row

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Two in a Row

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Two in a Row

The four weeks after my D&C rolled around pretty quickly and the day finally arrived to find out the cause of our most recent miscarriage (pregnancy number 9, and miscarriage number 8 for anyone counting out there).

It felt strange to find myself really hoping it was the balanced translocation. It probably seems like a weird thing to say, but I just really wanted to let go of the niggling feeling I had that there was something “other” than the translocation that was causing problems.

So, I was surprised and (I’m not even sure what the word for it is, because “disappointed” doesn’t really seem to cut it) when the OB told me that, once again, our miscarriage was due to “unknown causes”.

The reality of it for us, is that with the balanced translocation, we have a 1 in 8 chance (or 2 in 16 if you want to get
technical) of achieving a pregnancy that has “balanced” (or normal) chromosomes.

So to find out that we’ve been “unlucky” twice in a row – from the point of view of having a “normal” pregnancy that has miscarried not due to (un)balanced translocation, but due to “unknown reasons” feels more than just “unlucky”, and makes me think there has got to be some other problem we’re missing.

My OB immediately started going over my previous blood test results, saying that there were some minor abnormalities on the blood clotting tests, but that the results after often skewed during pregnancy so he didn’t think there really was an issue at the time.

His initial advice was to repeat the blood clotting tests now that I’m not pregnant any more.

…. Which led to the next issue, which was that I had taken a home pregnancy test that morning, which, you guessed it, was positive.

I didn’t think I was pregnant (I’m fairly used to getting some very specific symptoms when pregnant, so I usually know without having to take a test) so I was surprised it was positive, and immediately began worrying that I still had retained tissue from the last pregnancy.

My OB did a quick scan in his office and wasn’t 100% sure if he could see retained tissue or evidence of a new pregnancy, so we agreed to take an “urgent” blood test that afternoon to test hcg (pregnancy hormone) levels.

Our back-up plan was then, if there was a new pregnancy, to start taking blood thinners (as a precaution in case of an undetected blood clotting problem) or if there was not a new pregnancy, to return to the lab in two weeks to repeat the blood clotting tests.

Luckily, the results came through that afternoon to show a hcg level of 3 (apparently, the cut-off for confirmed pregnancy is 5) so the result was considered negative.

Which means, the next step is to re-do the blood clotting tests.

I also asked about having a test to check for Ashermans (scarring of the uterus), which my OB seemed a little reluctant to agree to (I think mainly because it’s an unpleasant test that you have to be awake for) but my plan is still to push for it, because I would like to rule that out as a possible cause of miscarriage.

So we’re back in the “let’s wait and see” what the next set of results show window for now…

On the one hand I really want to find out what the problem is so we can deal with it, and on the other hand I’m also just hoping that there really isn’t a new problem and that we were just really, really, really unlucky twice in a row (I’m an optimist but I also think the odds of that are unlikely).

Anyway, until next time, if you have any thoughts or experiences to share, I would love to hear them in the comments below…

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A False Alarm and a Good Scan

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A Good Scan and a False Alarm

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A False Alarm and a Good Scan

A month or so ago when I saw my OB he had been a little concerned because I’d been having spotting off and on again for quite a few weeks after my D&C.

He did a scan in his office that day and was fairly happy with how things were looking (couldn’t see any obvious signs of retained tissue) but asked me to go for a specialist scan anyway, just to be completely sure.

As mentioned in my last post, I agreed to that scan and then finally was able to go for it towards the end of November. I wasn’t really in any great rush for it and had found the spotting had slowed down in between anyway.

Just as a side note – I always have difficulty with wounds healing (for other non-pregnancy related surgeries) and have found in the past taking a course of zinc seems to help. It was a suggestion a surgeon gave to me a while back and I’ve done this a few times in the past. Anyway, the spotting cleared up a few days after I started taking the zinc, and it might be a coincidence or it might be that the zinc is helpful but anyway, just sharing the info in case anyone else out there is in the same boat and finds it helpful (also, I’m not a Doctor, so of course, check with your Doctor before taking anything you hear about from a random blogger online!)

So, back to the scan. The scan itself was pretty straight forward and the technician was able to tell me pretty quickly that everything looked fine and there were no signs of retained tissue.

He actually went on to say that everything looked picture perfect and that there is no reason (that he could see) why a pregnancy wouldn’t work out.

Of course, it’s nice to know that everything “looks fine” but it still doesn’t explain why you would miscarry what was apparently a perfectly healthy baby (and as I mentioned before, there probably was some other problem that we just don’t know about nor have the ability to test for at this point in time).

I had been really conscious of limiting my alcohol intake, especially around this time of year with all the Christmas functions and so on, PLUS because we had so many events on, I was taking a ton of pregnancy tests “just in case” whenever I had planned to head out for a few drinks (and when I say “a few drinks” – I mean 3! LOL!)

So anyway, another I had 3 functions, 3 days in a row so I was testing every day, and on the third day, I saw what was almost-kind-of a second pregnancy-indicator line but wasn’t fully convinced it was a positive test.

I grappled with it on my own for a while, and then went and recruited my Mum and Aunty and made them squint at this test too (geez I’m lucky to have an understanding bunch of people around me!) and they too after holding it in the right light and on the right angle could see the second line too (thank goodness, because I was starting to wonder if I was going crazy).

So I sort of spent the day wondering if the test was accurate or not, and just deciding that I would just have to suck it up and wait and see for a few more days.

I took two more tests over the next two days which were kind-of-similar. No obvious line but kind of a smidgen of maybe there was something there but maybe not?

And then on the third day I finally made my mind up when my cycle started anyway and I just stopped taking tests… so this time around, it was either a false reading on the test or a little embryo that was maybe there for a day and then didn’t stick around.

I really have no way of knowing so I’ll just have to wait and see what happens next time.

It did get me thinking that this has possibly happened before, but I wouldn’t usually be taking so many tests because I wouldn’t normally be nervous about so many events that have drinking involved, so normally I wouldn’t even know about it!

Looking forward to properly enjoying the silly season now and then winding back down to normal again 😉

Wishing you and your family a wonderful Christmas and New Year!

Until next time…

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G8 – The Second Scan

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G8 – The Second Scan

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G8 – The Second Scan

I kept myself as busy as possible the week following the first scan.

I find keeping busy and distractions are the easiest ways to stop myself stewing over the situation. And lucky, my Mr 4 keeps me on my toes!

I was a little nervous about meeting my “new” OB (he was the colleague of my first choice in OB – as the OB I selected was away that week – and had a couple of scathing reviews online… but I figured people really only write reviews when they’re unhappy, and I really just needed to see what was happening so was keen to go ahead with the appointment).

Finally, the day of my appointment arrived (21st September) and I went into my new OBs rooms with pretty much no expectations what so ever. At this point, I think its just easier to expect bad news and then just be happy and enjoy the moment if it turns out to be good news.

OBs are notorious for running late (and this one was no different) so I sat there dying for the toilet (because of the obligatory 2 glasses of water you have to drink prior to a scan) and tried really hard not to sneeze due to my increasing allergies and not being able to take my normal hayfever meds.

Anyway, I finally got called into my appointment, seeing the Nurse first, and gave her a run down of my history (5 miscarriages, 1 termination for medical reasons, 1 healthy baby, plus the current pregnancy, all due to Balanced Translocation). She looked at me and goes “oh, well that’s all a bit shit, isn’t it?” and I couldn’t help but laugh at the kind, but blunt way she empathised with my situation.

The new OB entered at that moment and I was surprised by how friendly, outgoing and caring he was (what’s with those weird reviews?).

Anyway, he said we better do the scan first, so I got up on the table and he started taking a look. He scanned my stomach for what seemed like forever, and then explained that what he was seeing didn’t really add up.

The pregnancy had progressed… it was measuring ahead at 8 weeks, but he was really struggling to see a consistent heartbeat. He spent about another 5 minutes searching and then asked if I would mind heading up stairs to the specialist scan centre for a more detailed review.

Luckily, the specialist centre was able to fit me in straight away. They did quite a thorough search and ended up finding a very faint heartbeat, measuring 36 (it should have been about 180 at that point).

They were very caring in explaining that the pregnancy was unlikely to keep progressing, but obviously they can never give a definitive timeframe or tell you exactly what to expect (because there are still rare occasions where everything looks fine the following week).

The manager came in to speak with me and said they could fit me in again at any time, and just to say that she had approved it when speaking with the reception staff. This was really reassuring, given I felt like I was running out of time to make arrangements with our holiday just over a week away now!

So anyway, I trudged back down to the OBs office to discuss the next steps. I had to wait around for a little while for the report to come through from the specialist centre (thank goodness my son’s Pre-K were able to extend child care arrangements at the last minute – I’ll share something funny about that further down!) and then the OB was able to squeeze me in for another appointment.

We discussed that things we looking pretty bleak and he asked me when I wanted to come back for another look.

I was worried that it was a long weekend, but he reassured me that OBs don’t really take public holidays or weekends off and that he would fit me in any time I wanted (again, what’s with the bad reviews on this guy!?)

So, we decided I would go back in Friday morning (it was currently Wednesday with the Thursday public holiday in between) and stressed to me just to call any time, day or night, if I spontaneously started miscarrying and needed intervention.

By Thursday evening I was having some pretty intense cramping and not really expecting a good outcome the following morning. The OB called me that evening and asked if, by any chance I could go in earlier the next morning. I was keen to see what was happening given the cramping and agreed to a 7:45am appointment.

I was also a bit worried because with all the commotion over the hard-to-find heartbeat, I had completely forgotten about the second sac, and made a mental note to ask about it the following day.

It was a pretty long night with not great sleep, and I was not feeling particularly optimistic about the scan. I had fasted in preparation, expecting it was likely I would be going in for surgery that day.

The OB met me in his office for the scan and he spent a good 10 or so minutes have a look. The measurements indicated that the embryo was now measuring only 7.5 weeks (when it had been measuring 8 weeks just two days before) and the shape looked quite strange… like it had started to shrivel up (for want of a better expression).

We were both pretty satisfied after looking thoroughly from multiple angles for about 15 minutes that there was no movement or heartbeat.

I did also remember to ask about that second sac, and, as expected, it had started to shrink and didn’t appear to have progressed.

We both moved back to his office and discussed booking in for a D&C that day. He assured me that he had room on his surgical list but would still need to see if the hospital had any beds available. He had to get back to the hospital, but I agreed to wait in a seating area until we heard further news (the offices weren’t really open or staffed so early in the morning).

A little while later a receptionist came and found me and said that we were still waiting to hear if there were any beds available. She said there were no patients today but that I could wait in the office where she was if I wanted.

So I headed over there to wait a little longer… and finally the OB came back to let us know there were no beds available that day, but that the following day was all clear for surgery. So, we completed all the paperwork and I agreed to fast again and go back the following morning.

As I was sitting there waiting for all the paperwork to be done, thinking I could really do with a wine that evening, I took a second to wonder whether I should really be having a drink given I would be going into surgery the next day, when luckily I spotted my OB heading out the door and called out “Important question before you go, can I have a wine tonight!?” he spun around and said “You can have 2 wines tonight!!” (I really need to write this guy a review to combat all those crap ones he has, hey?)

It did work out good in a way, because I had a ton of Calming Card orders to fill and was wondering where I was going to get time to do that, so I managed to go and catch a movie in the afternoon (the Elvis movie – it’s awesome, check out it if you get the chance) and then packed all the orders with the help of my Mum (thanks Mum!) and then headed into surgery the following morning.

I was first on the list but ended up having to wait around again due to an emergency that came in before me… but oh well, the surgery all went fine; and I was back on the ward in the hospital before lunch, getting to check out the awesome new on-demand menu that was thoroughly impressive – just like hotel room service (see the awesome breakfast they served me in the pic at the top of this page)!

So anyway, its disappointing that G8 was a no-go but I really feel on an emotional level that it was quite manageable. There are certainly worse outcomes and we’re feeling resilient enough to keep trying at least for a little while longer.

Let’s hope for better luck next time?

 

…and before I forget, that funny story about Pre-K is probably a fun note to end on. I called the Pre-K centre to check in on how Mr 4 was doing once I had finished with my appointment, and they said he was doing great, seemed settled and happy and suggested he stay for the rest of the day. I just asked them to check with him, and he said that was fine. I asked if he needed any more food dropped down, to which the cheeky little thing said “No, I’m fine, but tell my Mum she should bring me a chocolate when she picks me up.” Haha! He certainly knows when to try his luck 😉

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Where We’re Currently At…

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Where We’re Currently At…

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Where We’re Currently At…

It’s September 2022 and we stopped doing IVF about 5 months ago…

I mentioned in my last post that I would give a little update about what happened in between (in short we had a couple of more pregnancies, one that had a particularly emotionally draining ending and then turned to IVF for 1.5 years.

You can catch the whole story by checking out our YouTube Channel and then heading over to my instagram page which has a few posts and stories about our IVF experiences there).

It’s been just over 2 years since our last pregnancy and given my age (now over 35!!) and all the crazy hormones from IVF we really had no idea what our natural fertility or ability to become pregnant would be like.

We had a couple of months trying to just generally enjoy being IVF-free. We attempted to have a holiday (we ended up having to isolate in northern QLD with COVID! – so NOT a holiday when you’re stuck indoors with a 3 year old and no toys) and then enjoyed a few evenings out at restaurants, pubs and some lovely dinners at home enjoying our favourite wines, until one day I decided to purchase all the alcohol we would need for the Birthday /Holiday season (it starts in September in our household and finishes at Christmas) so naturally, the day the wine arrived, I found out I was pregnant.

Our first pregnancy in 2 years. I can’t say I really felt one way or another about it, basically just like “oh, so that’s happened” and then went through the motions of trying to source a new OB (of course the one I had built an excellent relationship with over the past 6 years has retired!) and then tried to make arrangements for early scans and early appointments (I feel like that “difficult new patient” already) because I just really feel like I need to prepare for the worst (given the very, very low chance of having a healthy pregnancy) PLUS I flew out to Broome that same morning AND wanted to arrange everything in the couple of weeks we had before we headed over to the Gold Coast for (our next attempt, hopefully COVID-free this time!) at having another holiday.

Of course, the OB I’ve selected isn’t available on the dates where I’ve asked for an early appointment, so has agreed for me to see a colleague. I was happily going along with the plan, thinking I could see the OB (colleague) on the 21st and if the pregnancy didn’t work out, book a D&C for the 22nd. But THEN a freaking public holiday was scheduled for the 22nd just to throw a spanner in the works.

Trying not to stress out about how I was going to manage the situation (of course, assuming the worst and that the pregnancy would not work out) I phoned the OBs office to check if he would be doing surgery’s on the 22nd

…they didn’t know at the time, but kind-of tried to reassure me that they would “work something out” if needed.

And didn’t I feel, again, like the most annoying patient in the world.

So anyway, before I get ahead of myself, getting back to today (15th September) and I find myself expecting the worst at my very first scan scheduled for that day, because I’ve had a little spotting, and I know, a lot of people get that during pregnancy, but for me I pretty much assume I know what it means.

So, I get into my scan and to my surprise… the technician see’s what appears to be a pregnancy that is progressing well (measuring ahead of dates) with a good heartbeat (she was very considerate in sharing this with me within the first 2 seconds of looking… I can see my massive file in front of her – haha!) and then, she proceeds to tell me that she can see a second sac…

Of course she can, why would things be simple?

This second sac appears to have an embryo in it that has not developed. She informs me that it is possible that it will just absorb… or that it may still progress – only time will tell.

I tell her that I’ve had some spotting, and is that the cause of it?

She continues investigating, and tells me that she can see where the spotting is coming from, it should clear up soon… and no, the second sac does not appear to be the cause of the current spotting, and reassures me that the second sac does not appear to be having a negative impact on the progressing, heart-beating embryo.

So, all I know for now is we need to “wait and see what happens”.

As soon as I feel like I’ve totally got my head wrapped around this Balanced Translocation thing and all the possible scenarios we’re facing, something new comes along for us to process…

I guess the biggest concern for me at this point, even though unlikely, is that the second embryo does progress but has an unbalanced translocation (it’s very, very unlikely they both would have a balanced arrangement of chromosomes, but you never know).

The technician did check, and it appeared that I released two eggs, so it’s unlikely that the one embryo has split (plus, from my limited understanding of this scenario, that would not result in two sacs…).

Anyway, so for now I guess I just have to hope that everything is looking OK next week and that there’s no potential problems… I also need to wait to hear back from the lab that checks for unbalanced translocations (a blood test at around 11 weeks) to see if we can still go ahead with their test given the situation (edit to add – the lab is unable to check for unbalanced translocation using a NIPT test when there are two sacs present).

There’s certainly never a dull moment in the life of planning a family when you’re dealing with balanced translocations.

Until next week…

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Jump Off the Band Wagon 2016 Haters

Jump Off the Band Wagon 2016 Haters

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Jump Off the Band Wagon 2016 Haters

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Jump Off the Band Wagon 2016 Haters

The last couple of weeks we’ve felt like the hate for 2016 has been mounting everywhere.

Has anyone else noticed?

It feels like everywhere you turn people are crapping on about how they can’t wait to see the back of 2016 as if it’s been the worst year of all time.

For the most part, it seems people are particularly upset about the deaths of a few celebrities, the Brexit issue, Trump getting elected and… I’m not really sure what else?

I’m not saying everyone had a fabulous year, but I really doubt it was as bad as everyone is making out.

I’m sure these outcomes weren’t ideal, or exactly what people were expecting, but surely it’s not the worst thing that’s ever happened?

I can certainly think of worse events in recent years!!

Reflecting back on this year, I can say we’ve had our fair share of bad luck, but I wouldn’t go so far as to say it’s been the worst year of our lives.

Regular readers of our blog may be familiar with the two miscarriages we have experienced this year, and our friends and family on social media probably saw one of our trucks was stolen just before Christmas.

Those times sucked, but I still don’t think it’s the worst year ever.

Thinking back, over-all it’s actually been a pretty good year.                       

Starting off in January, we got married. I think it was the most awesome party I’ve ever been to!

After that, we enjoyed a beautiful honeymoon in Singapore and Langkawi, followed by a holiday with family and friends – a trip we will remember and reminisce for years to come.

Later in the year, we experienced the trip of a lifetime with a whirlwind 4-day visit to India, and a month or so after that we relaxed in the Whitsundays for a week and a half.

Over Christmas, we enjoyed a family break away to Melbourne, the Mornington Peninsula and surrounds.

Throughout the year, we were pretty busy from a work point of view too – Sam traveled away quite a bit and we managed to launch our new website as well.

All in all, looking back, we achieved some great things, and even though we experienced some extremely difficult times, we certainly won’t let those define our year.

So, next time you feel like spreading the hate around about 2016, could you just re-think it for a second?

Was it really that bad?

We had some pretty crap times, but we’ve managed to challenge ourselves not to dwell on those.

If we can take a positive outlook, I’m sure you can too.

Here’s to hoping for an awesome 2017!

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