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When Your Know Your Risk of Miscarriage is High, How Long Do You Keep Rolling the Dice?

What would you do if your risk of miscarriage was high?

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When You Know Your Risk of Miscarriage is High, How Long Do You Keep “Rolling the Dice”?

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When You Know Your Risk of Miscarriage Is High, How Long Do You Keep “Rolling the Dice”?

A while back I mentioned we were waiting on some test results of the tissue taken from the D&C I had after our second miscarriage (known as “products of conception” or “POC” testing).

We had a phone call from our OB last weekend confirming what we had already suspected – that this pregnancy loss was also due to a chromosomal abnormality.

But what was interesting, and what we weren’t excepting, was that this test showed exactly the same result as the testing of our first fetus – part of Chromosome 1 was missing again.

So, this is where it gets interesting.

It’s difficult to assume at this stage that both miscarriages were simply “chance events”.

Our OB has explained to us that he now has a suspicion that one of us may have a tiny piece missing from one of our chromosomes (specifically, chromosome 1) that we have been passing on to our fetus’ (as a quick rundown, when an embryo develops it has 23 pairs of chromosomes, with 1 part of each pair taken from each parent, to make up 46 chromosomes in total).

So, if he is right, it means that for chromosome 1, there are potentially 4 combinations of pairs that could be made each time we conceive (two where the embryo does not inherit the dodgy gene and two where the embryo does inherit it).

Which basically means there could be a 50% chance of miscarriage each time (or, based on our assumptions, if we are super unlucky and both of us has a dodgy chromosome, we have a 1 in 4 chance of a successful full-term pregnancy each time).

Given this suspicion, we have both been sent off for more testing to confirm whether this is actually the case (we have both had 2 lots of chromosome screens already and they have both been clear each time, so we are now having a more in-depth analysis done on this specific chromosome).

Our OB gave us a quick overview of potential options – essentially, we can keep “rolling the dice” and hoping not to pass on that specific chromosome each time, or we can explore the option of IVF (where each embryo can be screened for defects) and hopefully reduce the likelihood of miscarriage in each case.

Since it’s still fairly early days for us, we’re both happy (well, as happy as you can be in such a situation) to keep “rolling the dice” for the time being – we both feel as though we’re prepared to keep going through this process with the knowledge that there is half a chance we could have a miscarriage on each occasion (on the bright side, there is also half a chance that we could have a successful full-term pregnancy each time!)

We’re assuming that, since it’s only a matter of chance, the gamble should pay off eventually, right!?

But in saying that, we will still take the next lot of chromosomal screening tests just for confirmation (or at the very least, further information about what we’re in for).

Until next time…

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5 Things No-one Tells You About Miscarriage

5 Things No-one Tells You About Miscarriage

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5 Things No-one Tells You About Miscarriage

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5 Things No-one Tells Your About Miscarriage

There is not much that anyone can do or say that can prepare you for a miscarriage.

In any event, I think it is probably different for everyone.

From my experience, my two miscarriages were both different… different in terms of physical symptoms and different in terms of my emotional reaction.

I’m not sure whether there isn’t much info that is given out when you experience a miscarriage, or whether you’re not really thinking clearly at the time, so it’s difficult to take it all in.

Regardless, there are a few things I learnt along the way that I hope might help others who either have or are currently experiencing what we have experienced.

1. You might not experience any physical symptoms

When I found out about my first miscarriage I was shocked and did not expect it at all.

Looking back though, there were a few signs. I had experienced intense cramps on a couple of occasions (painful enough to leave a social outing and go home), I had some sporadic, but not very obvious spotting (some people get this the whole way through their pregnancy though and everything is fine) and I had very little morning sickness (although, not everyone experiences morning sickness anyway).

I had also already seen the heartbeat at around 6.5 weeks, so there was no reason for me to suspect that anything was wrong.

The second time around, I was more in tune with changes and physical symptoms, but I didn’t experience any symptoms at all, so I didn’t know I had miscarried.

I felt quite sick with “morning sickness” every day, even at random times throughout the day. I didn’t have any painful cramps (I did feel like there was “something happening” on the lower left side of my stomach, but nothing that was painful or made me worry).

I really wasn’t expecting not to see a heartbeat at our first scan, even though I was nervous as hell about going to the appointment, and to be honest I didn’t actually believe them anyway when they told us they couldn’t find it.

2. The emotional pain might be worse than the physical pain

When we had our first miscarriage I was a mess. I just couldn’t get control over my emotions for weeks afterwards. Some days I felt fine, and other days I was beside myself with grief.

I’m not sure whether other people think about the possibility of miscarriage when they find out they’re pregnant. It was something I thought about, even though I didn’t think it would happen to us. For some reason, I thought that if it did happen, I would be OK.

I feel like there is some sort of “push” in general society that gives us the expectation that miscarriage is not really a big deal, and nothing to get too worked up about. Unfortunately, that’s just not realistic when you’re the one experiencing it.

In terms of the physical pain, it wasn’t as bad as I was expecting. I have heard some horror stories from others who have miscarried naturally, however, I opted for a D&C on both occasions and found that it wasn’t really painful at all. The first time, I took some painkillers but the second time I didn’t take anything and I felt almost back to normal by the next day.

The most noticeable side effect for me was when I started going back to the gym. I experienced discomfort (I wouldn’t really say it was painful) in my lower left side. I’m not sure why this happened, but my OB didn’t think it was an issue, so I pressed on and it went away eventually.

Lastly, you might not know how you feel about being pregnant again. After the first miscarriage, I was happy just to try again straight away. I thought that if I could get pregnant again everything would be OK.

Except, once I found out I was pregnant again, I was irrationally upset about it. I sat through an entire appointment with my GP just bawling my eyes out. I think she was a little taken aback, but you know what? Pregnancy hormones… there’s just nothing you can do about them!

This time around, I feel OK. I’m not sure if it’s possible to “get used to” the grieving process, but I didn’t find that I was anywhere near as emotional with the second miscarriage as I was with the first.

My whole attitude seems to have swung from being terrified of this happening again, to just accepting that this is life, sometimes these things happen, and there’s no point worrying about something that is out of our control.

3. It takes AGES for your body to go back to normal

You can still experience pregnancy-like symptoms for weeks, or even months after you have a miscarriage.

The funny thing for me was that I got MORE pregnancy-like symptoms after my first miscarriage than I had when I was pregnant!

The super-annoying thing is that you may still have positive pregnancy tests for a while after you miscarry too… which means it’s difficult to know if the symptoms are due to leftover hormones, tissue still needing to pass, or a new pregnancy (plus the hormones might make you feel a little crazy about all those possibilities too!).

I also found with both pregnancies that my belly expanded very quickly, and then took weeks and weeks to go back down again. By the time my stomach was finally back to normal, I found out I was pregnant again!

This time around, it’s been almost 4 weeks since the D&C and I’ve only just started to notice the swelling start to slightly subside.

4. It is difficult not to get frustrated with the thoughts, advice and general questioning you receive… if you haven’t asked for it

Don’t get me wrong, I am comfortable talking quite openly about pregnancy, planning, miscarriage, fertility issues and parenting in general.

Most often than not, I think it’s great, as it seems the more I blog about these sorts of topics on here, the more people are willing to approach me to ask questions and discuss their experiences. I certainly welcome that and I honestly think in some ways the grieving process has been easier on me as I get exposed to these sorts of topics a lot, and as such, I don’t get as emotional about it as I used to.

But I do want to mention a post that has been doing the rounds (check out the link to it here) which encourages us to be respectful towards couples and their choices of whether to have or not have kids.

So, I wanted to share with you a conversation I had recently, to try and highlight what this can sometimes look like in real life.

I was at a social gathering recently, and a person (who I don’t really know and hadn’t met before) said to me “How old are you?” to which I responded “30” they then preceded to ask “do you have kids?” and I said “no” and then they said “do you want to have kids” to which I responded “yes” and then they asked “do you think you will have them soon” and I replied “I hope so”. At that stage, I quickly excused myself from the conversation.

That was 1 week after my second miscarriage.

I’m not sharing this example to make anyone feel bad for having a conversation like this with someone, I really just want to raise some awareness so that people can hopefully be more conscious about the situation someone might be in before they ask persistent questions about when they are going to have kids (or insinuate that someone should be thinking about having or not having kids based on their age).

In saying this, I don’t think we (as in, people in general) should be worried about “saying the wrong thing” in social situations (like I mentioned earlier, I am fairly open to discussing issues such as this, and I wouldn’t want anyone to think they couldn’t approach me to talk about it), I just think we should just be more conscious about whether it is appropriate to question someone in this way if we don’t know them, or if we don’t have any idea about their personal situation.

5. You might not find out the reason you miscarried

You might get some sort of medical explanation as to why you had a miscarriage, but that doesn’t mean all your questions will be answered.

For example, Sam and I know that our first miscarriage was due to a chromosomal abnormality (our foetus was missing chromosome number 1) and our OB suspects that our second miscarriage was due to a chromosomal abnormality too (not sure which one, still waiting to get the test results back), but we don’t know what is causing these abnormalities to occur.

We have had a bunch of blood tests done (I had about 10 vials taken last week – fun times!) but all of our results have come back clear so far. Most importantly, we know that neither of us has a chromosomal issue that we’re passing on.

The best explanation we have been given so far is that “it’s just really, REALLY back luck”. Like, imagine if it was bad luck to roll two six’s in a row… apparently, that’s about how likely it is that this will keep happening to us.

But, only time will tell I guess.

If it’s only luck we need to worry about, here’s hoping for some “good luck” (or should I say “better luck”?) in the future.

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When Your Worst Fears are Confirmed

When Your Worst Fears are Confirmed

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When Your Worst Fears are Confirmed

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When Your Worst Fears are Confirmed

If you’re a regular follower of our blog you may have read about out how we were told last week that we had experienced another miscarriage (based on the lack of heartbeat visible at our 7-week scan).

At that point, I found it very difficult to believe we had experienced another miscarriage.

My morning sickness was quite bad and became much worse in the days following the scan.

I hadn’t noticed any signs of impending miscarriage and although I can’t say I didn’t believe what the Doctors were saying, I just found it difficult to believe based on what I was experiencing.

We pressed for a follow-up scan the following week and felt comfortable enough to wait until then to decide what to do.

We weren’t exactly expecting a miracle at the follow-up scan, but we hoped it would give us some comfort to know we had made the right decision to go through with a D&C procedure.

Unfortunately, the scan revealed the worst (measurement of the embryo was much smaller than the week previous and the Doctor didn’t say this, but it looked to me like it had started to disintegrate to some extent – we definitely weren’t able to make out the embryo or yolk sac as easily as we could the week before).

So, nonetheless, we started getting prepared for a D&C later this week.

Even though waiting can be a bit stressful, I’m glad we had the second scan. It gave us both peace of mind that having the D&C was the best path for us at this point.

In terms of next steps, our OB has offered to have the tissue tested (to hopefully determine the cause of miscarriage) and following that he will do some tests to find out if there is something causing them to happen.

I also spoke to my OB about a little hunch I have – a few years back I had surgery for another completely unrelated problem and following that it took months for my wound to heal (prior to that I’d had another surgery and my wound never healed properly, it opened up over and over again for about 3 years which prompted me to press for a second surgery).

After trying just about everything under the sun, my surgeon suggested I take a course of Zinc. I figured I had nothing to lose, so I did that for a month and funnily enough, the wound healed up and I’ve never had a problem with it since.

I have wondered since then if I have some kind of zinc deficiency. Ordinarily, I wouldn’t worry about it because it doesn’t seem to affect my day to day life, but just out of interest I did a quick search to see if there is any link between zinc levels and miscarriage.

Interestingly, it appears there has been some research into this area, and apparently, there was one study conducted which compared the vitamin and mineral levels of ladies who were pregnant with the outcome of their pregnancies. Out of the group studied, those who experienced miscarriages were all found to be deficient in both zinc and copper.

There were also a few interesting studies of cows, rats, and mice which found a greater likelihood of miscarriage in those with low zinc levels.

I also found a few other sources mentioning links between zinc and selenium levels and chromosomal abnormalities associated with miscarriage – all very interesting (note there’s not a lot of research on any of this, so any of these findings could just be coincidence).

I mentioned this to my OB – he thought it was quite humorous that I would suggest something so ridiculous, but I pressed on anyway and came to the conclusion that since a supplement isn’t going to hurt anything (except perhaps his credibility if it works – his words, not mine) I think I will give it a go all the same.

I’m interested to know if anyone else has ever heard anything like this before?

I’m not a Doctor in any way, shape or form, so please don’t take on board anything I’ve said here as something that could work for you if you’re in a similar situation to me. I’m merely interested in this possibility and wondering if anyone has heard of it before, or if someone has tried it and it’s worked for them?

Look forward to hearing your thoughts.

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What Happens When You Don’t See a Heartbeat at Your 7 Week Scan

What Happens When You Don't See a Heartbeat at Your 7 Week Scan

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What Happens When You Don’t See a Heartbeat at Your 7 Week Scan

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What Happens When You Don’t See a Heartbeat at Your 7 Week Scan

I thought it was fairly common not to find a heartbeat at an early scan.

But apparently, I was wrong.

We went for our first scan this Monday, only to be told that there was no detectable heartbeat, although our measurements indicated growth to 7 weeks. We were told, “this has probably only just happened”.

I thought that another miscarriage was pretty unlikely to be the case (I’d already had 3 blood tests to show my HCG levels were going up every week and my nausea wasn’t acting like it was going to ease up anytime soon).

The ladies at the ultrasound clinic reassured us that multiple miscarriages do happen and suggested we see our OB as soon as possible.

Luckily, his clinic is in the same building as theirs, so they showed us the back way to get there using the fire exit so we wouldn’t have to face all the mums-to-be and new-born’s parading up and down the halls and in the elevator on our trek up there. The receptionist was very understanding and agreed to fit us in to see our OB that afternoon.

I spent most of the afternoon googling how common it is to see a heartbeat at 7 weeks. There were numerous stories of ladies online reporting that they saw no heartbeat at 7 weeks and then a very clear one a week later.

There were also an equal amount of sites indicating that a heartbeat should show at 7 weeks unless the dates were miscalculated. I thought a miscalculation was a very real possibility for us, considering we were surprised to find out we were pregnant in the first place.

There was also some disturbing research from the UK that indicated about 1 in every 200 miscarriages were diagnosed incorrectly, leading to unnecessary D & C procedures. It appeared guidelines in most countries had been updated in recent years to reflect those findings, but it really didn’t do anything to ease my mind about our experience.

Mid-googling, Sam called to check in on how I was doing. I was clearly pretty upset and relayed my findings to him. We had a long chat and decided that, although we were sure the technicians administering the ultrasound knew what they were talking about, that we would insist on another scan for a second opinion, just to ease both our minds.

So, we waited in angst the next few hours until our appointment time.

Our OB was very understanding and patiently explained to us that it was highly unlikely that there was an error with the scan. He explained that we had probably just been very unlucky to experience a miscarriage on two occasions and agreed that this was unexpected given our earlier blood tests.

His suggestion was that we have another D & C so that he could test the remains (it’s so early I’m not even really sure what to call it this time? Embryo? I’m not sure this one would have made it to fetus stage?).

I reluctantly agreed, but we continued to question the integrity of the test. Our OB was very kind and understanding and agreed that he would do another scan for us the following week for peace of mind, before doing the D & C. We agreed that would make us feel more comfortable and thought the plan seemed sensible.

So… now I get to spend the next week continuing to experience nausea and tiredness knowing with pretty much full certainty that we’ve had another miscarriage.

I’m not exactly holding on to any hope for that scan on Monday, but at least I’ll know that we were absolutely certain…

I know that multiple miscarriages and recurrent losses aren’t as common as single miscarriages but if you have any thoughts or wisdom you would like to share, please feel free to comment below.

Until next time…

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The Great Anti-Climax

The Great Anti-Climax

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The Great Anti-Climax

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The Great Anti-Climax

You would expect someone who just found out they were pregnant after a recent loss to be overjoyed, right? I would have thought so too. Except… that’s just not how I felt.

OK… so rewind a few steps. The last few weeks have been fairly hectic for us. We have been to India and back, to Melbourne and the Whitsundays on “holiday”, we launched our new website, and, oh yeah, we made a baby too!

So, it’s safe to say it’s been a fairly crazy few weeks!

Towards the end of our “holiday” (I say this with inverted comma’s because I’m not sure any small business owner knows what a holiday actually is… it’s really just going away and doing a few fun things in another place… while you keep on working), anyway, while we were away I started getting an inkling I was pregnant.

You might think this sounds silly, but a few days before finding out for sure, I noticed my stomach looked and felt different… the way it looked and felt last time I was pregnant (slightly swollen and firm to touch). Anyone else would probably think I was imagining it (and it’s not the first time I’ve had phantom-pregnancy symptoms), so I didn’t bother saying anything.

A couple of days later, I started feeling a bit off. That was the same day we launched the website, so I thought that I was just so excited and nervous about the launch that the anxiety of it all was making me feel ill!

I put a bottle of champagne in the fridge ready to celebrate, but felt so sick I didn’t think I could bring myself to enjoy it properly. So, instead, I resolved to get a good night’s sleep and drifted off with happy thoughts of popping celebratory champagne the following evening.

The next morning, I thought maaaaayyybbbe I should do a pregnancy test… just to be on the safe side before polishing off some of that champagne.

And what do you know!? The test was positive.

This is the point where you would think I’d start crying happy tears. But… I didn’t… do… anything. I just felt kind of… complacent. Almost as if I was trying too hard not to care about the situation, just in case it didn’t work out.

Luckily, I had some time to myself that morning. I’m naturally an early riser, so I had an hour or so to let it all sink in before Sam got up. During that time, I just plugged away at my laptop, trying to keep distracted, willing myself to be happy, but all in all just feeling fairly numb.

Then I heard Sam get up and start bustling around the house. Next minute, I see him head outside and start tinkling with the sprinklers. I was pretty busy with the website, so decided I would just wait for him to come back in before sharing the news.

Eventually, he came back into the house, said good morning, and started giving me the latest update on the new retic he had set up and the old retic he had been fixing (married life, thrilling stuff!!)

Anyway, once I thought he’d finished telling me all about this, I said “I had a positive test this morning”.

His response? Looks at me quizzically and asks “How many new subscribers on the website?”

See what I mean? TOTAL anti-climax. To which I respond “UM… did you hear what I said?”

His response? “No, I wasn’t listening”

*sigh*

Eventually, we’re laughing about this silly miscommunication, and over-all we’re both feeling quite happy at the prospect of maybe-being-parents-again.

Then, Sam asks me how I’m feeling about sharing the news. We both agree that it’s our news, and if we want to share it, well, that’s our prerogative.

We obviously know that it might not work out and that we’re probably going to have to deal with the judgement issue from people all over again, but we agree that if we don’t have a problem with it, then other people shouldn’t either, and we’re certainly not prepared to take on board the attitudes of others just because they disagree with us.

So, for a couple of hours, I was feeling pretty good! I called our parents and sister to share the good news. Everyone was very, very excited and feeling positive!

I did a little bit more work, and then decided I should tidy up the house, make the bed, get dressed, do the dishes… all that usual house-hold type stuff.

Then… I don’t know what came over me.

One minute I was OK, and the next I had my hands elbow deep in soap suds, sobbing away about… I’m not sure what.

Perhaps a combination of things?

What if this doesn’t work out? What if people are judgemental like last time (sure, I can act like it doesn’t bother me, but the thing is, I just can’t understand why people find it so difficult to be nice about it).

What if it DOES work out?

Am I upset because I’m happy, scared or sad? I really don’t know!

Anyway, since then… I’ve been “kind of” OK.

When Sam’s around, I find we can laugh and joke together and I feel pretty good about it all!

Then there are other times (like when I went to the gym and for some reason spent the whole work out trying not to cry as I peddled away at RPM). Then, a few hours later, I could laugh about it, thinking about how I must have looked to the other riders… hoping they just thought it was the toughest work out ever almost bringing me to tears… LOL

I also feel very fortunate to have an extremely attentive and thorough OB. He called me as soon as he got my blood test results (it was literally the next working day after I had the test done) to confirm the pregnancy and was very caring and patient in explaining the next steps.

The next thing I need to do is take another blood test next week (I’m guessing to confirm the hormone levels are rising…) and now I’m just trying not to feel nervous as hell about the result.

I don’t know that there’s really much I can do, other than take each day as it comes…

If you’ve been in this situation before I would love to hear your thoughts. If you’re not keen to talk about it… I can completely understand that too.

Alternatively, if you have some words of wisdom to share, feel free to do that too!

Until next time 😉 

P.S. I mentioned earlier that we launched our website – if you pop over to the log in area you can get a free membership to access our strategies – this is FREE for a limited time only!

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