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Another One Bites The Dust

balanced translocation miscarriage pregnancy blog

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Another One Bites The Dust

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Another One Bites The Dust

You can probably guess from the title that the outcome for G9 was not a good one.

I went in for my 8 week scan (really 8 weeks, 6 days) and could see pretty quickly that the pregnancy had not progressed. There was clearly no heartbeat and the embryo looked like it had deteriorated significantly, measuring only 6 weeks gestation.

One of the crappy parts of miscarriage is that you can have one but still experience pregnancy symptoms and show no signs until you get to a scan or check.

That’s the usual experience for me, which is why I opt for a lot of scans, as I don’t like to leave things too long in case of complications / infections from retained products and that sort of thing.

Of course, my new OB was away so his colleague very kindly stepped in and rushed me in for an appointment the same afternoon as my scan.

She was lovely, and discussed some concerns with me about repeat D&C’s (a suction type procedure that removes the pregnancy from the uterus) as it can cause scarring (otherwise known as “Asherman’s Syndrome” and pre-term labour in an otherwise healthy pregnancy).

I had been a little concerned about Asherman’s due to our last loss having an “unknown reason” (not caused by unbalanced translocation) and asked her a little bit about whether she had any recommendations for me (it can’t hurt to ask for other opinions if you have to see someone new anyway!)

She suggested some tests I could have to check for the syndrome, a fertility specialist I might like to consult, and said that she would also check for signs of it when she did my procedure the next day (not really a fail-proof check, but she said sometimes she can get a “feel” for whether there is already scarring when she does a D&C).

I said I’d really appreciate her thoughts after the procedure and asked if she could leave some notes for me. She very kindly offered to come down and see me after the procedure (pretty nice of her, considering I’m not really her patient and most Dr’s don’t’ come to see you until your follow-up appointment in my experience).

So, I went in for the procedure this morning. It was all pretty non-eventful as far as procedures go and the OB came down to see me afterwards as promised.

She said that she didn’t recognise any signs of scarring but still said I could get a referral for a proper procedure to check if I really wanted to. I agreed just to wait until the results of my genetic testing on my embryo came back to see if it was an unbalanced translocation before opting to any further investigation.

So we are in the waiting game again for the next 4 weeks just waiting on results before deciding what to do next…

If you have any thoughts, comments or experiences with Asherman’s (or any other insights you’d like to share) I’d love to hear them in the comments below.

Until next time…

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The News We Weren’t Expecting

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The News We Weren’t Expecting

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The News We Weren’t Expecting

After 8 pregnancies, 5 rounds of IVF and two failed transfers I feel less like I’ve “seen everything” and more like “What new challenge do you have for me now?” when it comes to Doctor reviews.

So, like, usual, I requested “Products of Conception” testing from our miscarriage, just for my own peace of mind that the miscarriage was caused by an Unbalanced Translocation and not some new thing…

There was a fair bit of time between my surgery (a D&C) and being able to see my OB for a review because we were on holidays, and then when the day for my review finally arrived my Mr 4 had come down with a bug so I had to cancel it.

So finally, yesterday (2nd November) arrived and I was able to make it to my Doctor’s appointment.

We started the appointment by me explaining that I’d had spotting off and on since the D&C but not really been to concerned about it due to not having any pain or fevers or anything, to which my OB became quite concerned and asked if he could do a scan right away…

So of course I agreed to the scan and he thought that everything looked OK but still asked if I would go for a specialist scan just to rule out retained tissue or other issues.

I was happy to make arrangements for another scan, and then he said “Now, my news.”

I was sort-of just expecting him to say “Genetic testing showed an Unbalanced Translocation between chromosomes 1 and 21” but instead he said…

“I’m really sorry to let you know that there were no chromosomal abnormalities.”

I’m not sure I really processed what he meant as he started to explain the reasons why this might of happened and immediately I jumped to conclusions, thinking there must be something wrong, especially given I had spotting all through the pregnancy and since the D&C as well.

I told him I was really worried. Especially since we had also had two failed IVF transfers of “chromosomally normal” embryos prior to this…

He took some time to reassure me that approximately 50% of the miscarriages he sees are “unexplained” with “normal” chromosomes… and reflect that it was actually against the odds that we hadn’t previously had a miscarriage with “normal” chromosomes given how many pregnancies we’d had.

I walked away from the appointment feeling pretty deflated… it’s so hard to achieve a pregnancy with “normal” chromosomes when you have a Balanced Translocation (there’s only about a 1 in 8 chance of that happening for us), for it to miscarry for some “unknown” reason just feels really unfair.

I turned to my support group to ask for other experiences and to whether this had happened to anyone else in the past with Balanced Translocation… and I was overwhelmed by the support and stories of this happening to so many other people too. Many of those had been at much later stages in pregnancy as well.

It did make me feel in a way that I was grateful that if this was going to be the outcome, that it be the outcome now rather than later. I also took comfort in the thought that maybe there was actually something “wrong” with that embryo, but perhaps we just don’t have the knowledge or technology yet to test for whatever that abnormality is.

At least dealing with a miscarriage is something we’ve done so many times now that we have the ability to see the “positives” out of a shit situation and the resilience to just keep on powering on.

I’m not going to make any assumptions that scan outcome is going to be “fine” but lets just all hope that there’s no new problems to deal with.

Until next time, fingers crossed…

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Dealing With Due Date Number 4

Dealing With Due Date Number 4

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Dealing With Due Date Number 4

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Dealing With Due Date Number 4

Due dates following loss are always difficult to take.

They’re a clear reminder of what you’re missing out on… a little person you longed to meet but never did and will forever wonder about.

The 8th of April 2018.

It’s a date a look on as bittersweet… our due date for baby number 4, who only lived a tiny existence for a couple of weeks.

It is a strange feeling, to mourn the loss of one baby while feeling so grateful to have a healthy one on the way.

I try not to think too much about “what could have been” and focus more on the present.

I rationalise where we are at now (18 weeks pregnant and counting!) by thinking that if we hadn’t experienced all those losses… we also wouldn’t be experiencing the immense joy and anticipation of what is on the way for us now.

I also think of all the things we have gained. All the couples who have reached out to us to share their experiences and stories with us. I feel like we have learnt so much from connecting with others who have experienced loss or fertility issues and that has helped normalise our experience (and I hope normalise the experience for others too).

That’s not to say that if I could have prevented those losses I would have, as I don’t think anyone should have to experience so much grief over such a long period of time, but I also think these experiences make us stronger, bring us closer together and help us appreciate what we do have now.

The grieving process is different for everyone, and I wondered for a long time what I would do with the tiny memento’s I had from the tiny babies we lost… ultrasound scans and that kind of thing.

It is hard to know what to do with them… it’s not as if you want to keep them out on display, but at the same time, you also don’t feel right about getting rid of them or shoving them at the back of a drawer somewhere (which is exactly what I did… not really wanting a constant reminder of my tiny little beings that did have tiny little heartbeats at one point in time).

Until one day, a beautiful box arrived on my doorstep that had 4 little angels inside.

Such a thoughtful gift to represent the four babies that we had lost.

I decided at that time that I didn’t have to keep their tiny ultrasound pictures shoved into the back of my drawer and felt so much more comfortable about giving them a beautiful resting place.

It also reminded me that we’re not alone with our grief – our losses have such an impact on others around us too.

I can’t speak for others, but I personally felt that this was a beautiful way to remember our angels.

If you know of someone who is experiencing something similar and you want to help but aren’t sure how… I hope this helps give some inspiration.

As always, feel free to share your thoughts below.

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Pleading the Fifth

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Pleading the Fifth

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Pleading the Fifth

I think it’s safe to say at this stage that there isn’t much we keep secret about our family planning challenges and experience with the multiple pregnancy/loss scenario we have found ourselves in.

I think there’s a lot to be gained by being open and honest about your experience – it means others open up to you, you get the opportunity to support each other, and you don’t have to skirt around those awkward “when are you going to have kids” questions that people love to ask.

Most times, if people ask, I just tell them honestly about what our experience has been. Usually, people will take it quite well and often share an experience of their own or someone they know as well.

But every now and then we do find ourselves in a situation where we’re around people we don’t know all that well… and in order to avoid making them feel uncomfortable, there are times when I do skirt around the inevitable “so, when are you two having kids” *wink wink* *nudge nudge* with a fairly ambivalent and non-committal “I don’t know” type of response.

It happens more often than you would think… a couple of examples from this month alone include, at the pool shop, getting my groceries at woollies, and at a casual BBQ… sometimes it feels like you just can’t go anywhere without being asked the big question!

I know I openly promote the notion that if people just talked about their experiences more openly it would reduce the awkwardness of such conversations for everyone… and maybe people would realise that miscarriage and fertility issues are so common (1 in 6 people experience fertility issues and 1 in 4 pregnancies end in miscarriage) that to respond to the big baby question with your honest experience would just be acceptable.

But unfortunately, it isn’t always that easy.

Even though the question can make those of us experiencing difficulties feel uncomfortable… it’s hard to know how to respond to the question without making the other person feel bad for asking.

I don’t know that there’s a real solution, but I have found what works for me is – if it’s someone I know well (friend, family member or colleague) I will just tell them what our experience is.

Usually, most people are understanding and supportive.

If it’s people I know I’m going to see again, but don’t know well enough to gauge how they might respond, I give a fairly standard “I don’t know” type of response and focus the conversation back to being about their kids (people love talking about their kids). My reasoning here is, I don’t want to make them feel uncomfortable for asking and I’m sure when I know them better I’ll tell them eventually.

If it’s people I’m never going to see again… I do tell them. I think if they think it’s reasonable to ask a stranger such a personal question, it must also be reasonable for them to hear my personal response, and generally, I don’t care if they feel uncomfortable about it.

Even though I have these standard types of responses in the back of my mind, there are other times when the question just completely catches me off guard, like it comes out of no-where and I really don’t know what to say at all…

But I do think there’s a solution to all this.

I think if people just spoke openly to their friends and family about fertility and loss (especially since it is impacting so many people in our community!) it would become more acceptable to just say why you don’t have kids when people ask the question (and perhaps less likely that people would ask the question in the first place!)

Although, I don’t think “the question” is the problem.

I think the inability to feel as though we can honestly answer the question is the real problem, and that needs to change.

People aren’t going to understand that these experiences are so common unless they hear it from the people close to them – their family and friends who are experiencing loss and infertility.

We are the only ones who can change this perception that it’s “not ok” to talk about loss or infertility.

So, don’t feel like you need to keep it a secret. The more people hear that these experiences are commonplace, the more it will become acceptable to answer, “when are you having kids” with “when we stop having miscarriages” or “hopefully when we start our next IVF cycle”.

What are your thoughts? Do you think if people spoke more openly about their experiences, the culture around talking about fertility and loss would change? Do you think there would be less of an overwhelming feeling to keep these issues a secret?

Look forward to hearing your thoughts.

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Baby, I Got You on My Mind

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Baby, I Got You on My Mind

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Baby, I Got You on My Mind

When you experience a loss, there are key date’s that can be difficult to overcome. When it is someone who you were close to, there’s the Birthday’s, the date they pass, and special holiday’s or occasions you would have once spent with them that can be difficult to get through without them.

You can’t help but think about the person that would have been there, what they would be doing, wearing, saying, how old they would be… the thoughts that go through your mind are endless.

As someone who experiences recurrent pregnancy loss, there can be so many dates that are challenging to deal with.

There is every single due date you didn’t have, and every holiday or special occasion where you almost can’t help but think “this would have been her first Christmas” or “I should have been going on maternity leave around now”.

I’ve just passed my 3rd “due date” and I hadn’t been convinced prior to this that there was any real way to deal with the thoughts and emotions that go through your mind.

I suspect it works differently for everyone, and from my personal experience, I have found that I felt differently about each due date too. I guess we don’t ever really know how we will think or feel until we find ourselves in certain situations.

For my first due date (13th March 2017), I tried to just forget about it. Then I realised I couldn’t. I tried to reason with myself that there is no such thing as “meant to be” there just “is”.

I didn’t allow myself to think about might “might have been” or “could have been” or “should have been” and focussed on what “was”.

By that stage, I knew about the balanced translocation and felt fairly confident that even though our odds of having a healthy baby were low, that it would happen for us eventually. I resolved myself to the fact that we would have to be patient and persistent and focus on the hope that there was the possibility that everything might work out next time.

Then my second due date with no baby rolled around and I didn’t even actually know it was coming.

I hadn’t bothered too much about remembering it, and I had no inclination of wanting to either.

That was until I saw a post on Instagram where a lady was asking those of us who had experienced recurrent loss ladies to share our “due dates” as part of a collective memorial.

I really like to see ladies supporting each other in ways like this and thought her idea was really lovely, so went to send my dates in to her… and realised that my second due date was going to be 3 days later, and then immediately wished I had just left myself floating around in my blissful bubble of due date ignorance.

Do you ever think things like this happen for a reason? Did I stumble across that post in my Instagram feed because someone wanted me to remember… or was it just a random coincidence?

I’m not even sure where I fit in when it comes to “signs” or “messages from another realm”. Half of my brain, the rational side, tells me that its just a coincidence. The other side of my brain likes to romanticise about another realm where those we’ve lost get to exist and send us signs or messages from time to time so we don’t forget about them…

…but enough day dreaming aside, funnily enough, I made it through that second due date without too much hassle, and now I still can’t remember when it was anyway (June or July 2017 sometime…)

Then there’s my 3rd due date, which just passed this Saturday, the 9th of December. It wasn’t really one I could forget easily. It is a significant day of loss for our family and not likely one I will be able to put to the back of my mind and forget about.

So, I couldn’t help but think a fair bit about my 3rd due date a fair bit over the past few weeks.

I tried hard not to think about it, but it kept creeping into my mind, and I knew full well it was coming up.

I couldn’t avoid it, even though I tried not to think about it, and I decided that I didn’t really want to talk about it either.

I had this theory that it might be easier for me to get through if I didn’t mention it to anyone.

I am all for being open and honest about loss and talking it out when you need to, but I also think it’s important to recognise when you’re not feeling up to talking or don’t really want to acknowledge what’s going on.

We all have different ways of coping with things, and I have even recognised within myself that my coping mechanisms change all the time. I have realised that you can’t predict how you will feel at any given moment and it’s better to keep your options open, so you can do what ever you feel you need to do at the time.

So, this time around, I made plans to spend time with family. We planned a delicious dinner full of foods one should probably avoid when pregnant (natural oysters, prawn cocktails, espresso martini trifles and a nice array of cocktails!) and we played some board games and generally had a great time with lots of laughs.

I didn’t feel the need to bring up the significance of the date, but I knew I could if I wanted to and that would be OK too.

I’ve learnt this time around that it doesn’t really matter what you do, you can’t avoid these dates, or the significance you feel when they arrive, but you can make plans to enjoy yourself despite what you might be feeling and make sure you surround yourself with people who will “get it” if you suddenly decide you can’t be part of the party for a while.

I got through it, and I was fine, and I actually had a really good time, despite the lingering date in the back of my mind.

I think I even managed to forget about the dreaded “due date” a few times over the course of the day and evening.

There’s at least 1 more due date for me to get through (April 8, 2018) and I suspect the lead up will be just as difficult and there will be just as many thoughts going through my mind as every other time, but each time you get through one of these difficult times, you get to remind yourself that you are stronger than you think, you can do it and things can get better.

It’s so much more important to focus on the things you have now and the hope you could have for the future, than falling in to the trap of “what could have been”.

I know this is different for everyone and I’d really like to hear how others get through difficult times when it comes to loss and dates of significance. Feel free to share your thoughts in the comments below.

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