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Good News and Bad News

Good News and Bad News

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Good News and Bad News

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Good News and Bad News

We had our miscarriage follow-up appointment last week and were met with good and bad news…

The good news is that the embryo testing indicated that there was an unbalanced translocation on chromosome 1 again (ie it had an extra piece of chromosome 21 on it) which resulted in the miscarriage (if you’re wondering why that’s good news, it’s because no new problems were found, which means we feel a little more confident that this is what is causing the miscarriages… and we’re happy there isn’t a new problem).

The bad news… we’re just so freaking unlucky to have hit that chromosome combo 3 times in a row.

Our OB suggested we head to Kalgoorlie and play some two-up…

Which, was kind of funny, because Sam was actually about to head to Kalgoorlie, and I had been joking with a couple of people about wanting to just stand there and flip 2 coins over and over again for a while just to see exactly how hard it is to get one particular combo 3 times in a row.

So… it’s back to square 1 for us again now.

We had the “should we do IVF” conversation again and decided we’ll just try our luck for a bit longer…

I am conscious of my age (31 and counting already, yikes!) and I was a bit worried about the aging of my eggs.

I asked my OB whether it would be worth freezing some just in case we decide do to IVF down the track (my thought was that I wanted them to be as “young” as possible in that scenario in order to avoid other future potential problems associated with aging eggs), but we were basically advised that the cost of retrieval and freezing is about the same as IVF, so probably best to just do IVF if we’re thinking along those lines.

I did wonder “but what if I get to 38 or so and decide then than I want to do IVF and realise I could have had my younger, healthier eggs in holding all along…” to which my OB just gave me a reality check saying he didn’t think I would be likely to go that long without making the decision to go down the IVF path… fair call I say!

So, I guess we will just wait and see what happens.

Fortunately for us, the “getting pregnant” part of things seems to happen fairly quickly, so I’m hopeful we might have some luck in the near future.

Until then I’ll be semi-hoping for a pregnancy and semi-not-hoping for one all at the same time, as I know what it’s like to go through the happy/sad/anxious/stressed/whatwasithinking cycle associated with recurrent miscarriage over and over again.

But, I guess you win some you lose some. If you don’t try, you can’t succeed, right? So, I’ll just try to hold on to that little mantra for now.

Until next time…
 


Before you go, have you or someone you know experienced miscarriage, stillbirth or infertility? Throughout the month of October, we will be asking for people to share their story to raise awareness and reduce the stigma associated with these “taboo” topics. Check out this post for more info on how you can share your story.



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One in Four – The Exclusive Club No-One Wants to be Part Of

One in Four - The Exclusive Club No-One Wants to be Part Of

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“One in Four” The Exclusive Club No-One Wants to be Part Of

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“One in Four” The Exclusive Club No-One Wants to be Part Of

You might be surprised to learn that 1 in 4 pregnancies end in miscarriage.

You probably know more than a few people who have experienced one.

These people are your close friends, your relatives, your sister, your aunt, your best friend. The lady in the shops who looks so sad, but can’t tell anyone because that’s just not what you do in times like these.

You probably don’t know about the pain these women and men are experiencing, or the fact they are even experiencing it, because many of these people feel as though they cannot share their pain, or their stories of loss.

Some people want to, but don’t know how.

Other people have shared, and found it made others feel so awkward or uncomfortable, that they decided never to speak of it again.

Some of us feel so guilty about the fact that we experienced this loss, that we blame ourselves, and fear others will blame us too if we ever get up the nerve to mention it.

Then there are others, who keep talking about it anyway, because they hope to reduce the stigma associated with pregnancy loss.

Those of us who KNOW we’re not alone, that we didn’t cause this tragic event to occur, that we can make a difference by being open and honest about our experiences, and help each other cope through these difficult times.

Although we know that people simply just can’t understand unless they have experienced a loss this significant. A silent loss that’s difficult to explain because you can’t physically see it or hold onto it.

A loss that is only in your imagination, mourning for a tiny little person you never met, who never existed in this world, that you get to spend every single day of the rest of your life wondering if they would have had his eyes, your smile and a mixture of both your personalities.

A person who you had hopes and dreams for, that you planned your life around.

Who then made you change all those plans, because they never quite made it into those dreams you created for them.

Unfortunately, people see an early pregnancy loss as less significant in some ways, because it’s just an embryo, it may even be a fetus, or it may not have even made it to that stage.

But for the people living the loss, it isn’t any of those things.

When you find out you’re pregnant, you tell your partner, and maybe some other close friends and relatives, if you so choose, that you’re having a “baby” and from then on, that is what you imagine in your mind, and that is what you make plans for.

So when you lose a pregnancy, no matter at what stage, you’re losing a baby, and all the plans and dreams that you had attached to that baby.

And that’s what I think people don’t understand.

It’s not just a physical pain, it’s an intense, emotional level of silenced grief that you cannot explain, physically demonstrate or completely understand unless you have lived it yourself.

You’ve suddenly joined a silenced club of “1 in 4”. An exclusive club that so many others are part of, wondering around in every day of their lives, oblivious to the millions of other people who are also walking around in this silenced club.

But, this club doesn’t have to be silent.

I am hopeful that we can raise awareness, and break down the barriers of silence associated with miscarriage, pregnancy loss, still birth and infertility.

Over here in Australia, there is an “unofficial” day of recognition in October for people who have experienced pregnancy loss.

In honour of this day of recognition, as an attempt to raise awareness, we will invite people to share their stories of miscarriage, pregnancy loss, still birth and infertility.

All stories are welcome, and all submissions will be published on our website (anonymously if people wish to do so). We would love to hear some stories with good outcomes to help give a little hope too!

Together we can raise awareness, reduce the stigma, help others recognise just how common these experiences of loss are, and I hope, show that is it OK to talk about loss and support one another through these difficult times.

If you’re interested in sharing your story, email me at info@ohbeehave.com.au or fill out the get in touch form on our website if you prefer to share your story anonymously.

We might not be able to revoke our memberships from this exclusive club none of us wants to be part of, but it doesn’t mean our club has to be bound by silence.
 


Photo Credit: Ammon Creative

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13 Stupid Things People Say After You’ve Had a Miscarriage

13 Stupid Things People Say After You've Had a Miscarriage

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13 Stupid Things People Say After You’ve Had a Miscarriage

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13 Stupid Things People Say After You’ve Had a Miscarriage

I know, it can be awkward when someone tells you they’ve had a miscarriage.

You don’t know what to say and find yourself saying something totally random and then have no idea how to recover that weird comment.

We’ve had 3 miscarriages now and I’ve heard my fair share of weird.

I talk to other ladies who’ve had miscarriages too and often we’ll compare experiences and roll our eyes at some of the weird, bizarre and sometimes downright insensitive comments people make.

Anyway, while I don’t think there is any “right” or “wrong” thing to say (and I’m certainly not trying to upset or offend anyone in any way, as I know most people are trying to look for something suitable to say), I hoped that perhaps if I shared some of the weirder and / or less helpful statements myself and others have heard there might be some hope that people will try to avoid these the next time they’re speaking to someone who’s just had a miscarriage…

1. “It wasn’t meant to be”

2. “It’s just God’s way”

3. “This probably won’t happen again” (like, every Doctor I ever meet…)

4. “I hope you are well” (seriously!?)

5. “You shouldn’t have told anyone you were pregnant, because that’s what happens”

(that’s right, I forgot that if you tell someone you’re pregnant, you automatically have a miscarriage)

6. “Maybe you should have taken it easier at the gym”

(Yes, because I heard exercise has a large impact on chromosome selection *face palm*)

7. “Do you think it’s because you’ve been a bit stressed?” (NO!)

8. “At least you know you can get pregnant”

(After the first loss I didn’t mind this one so much, but now I really don’t find it helpful. I realise there are plenty of people out there who experience fertility issues and difficulties getting pregnant. Yes, that scenario sucks. Recurrent miscarriage sucks too. This isn’t a competition over which one sucks the most. Both those situations suck, and they’re not comparable, so it’s best if they’re not compared.)

 9. “Do you think you will have kids?”

(Like how the f… should I know!? Oh Sorry, give me a moment while I just go consult my crystal ball…)

10. “You just make sure you look after yourself from now on”

(cheers for the reminder, I had clearly been neglecting myself prior to this…)

11. “Maybe you should take a break”

(Look, these miscarriages have nothing to do with the inner workings of my uterus. They are caused by a genetically predetermined chromosomal abnormality. P.S. I also have a Doctor who I pay a lot of money to know his shit, so to speak, about this stuff, and if he says there’s no need to take a break, there’s probably a good chance we’re not going to take a break. Taking a break Makes. NO. Difference.)

And last but not least, my absolute least favourite comment…

“At least you’re trying”

(thanks, I’m glad to be able to offer you a consolation prize… as if we would be doing a great disservice to the wider community by not even “trying” *insert eyeroll*)

If you’re reading this and thinking “shit, I’ve said one of those things…” Don’t worry about it.

I know in most cases, what most people say is intended to be helpful and comforting (at least I’d like to think that).

Sometimes it also comes down to the context in which the comment is said as to the way it is taken…

…so at the very least, I would like to share with you a couple of things actual medical professionals have said to me that I think really take the cake, so take comfort in knowing you haven’t spurted out one of these dooseys…

This first example was from my recent admission to hospital to have a D&C.

Usually when you go into hospital for any procedure, you fill out a heap of forms, then the nurses go through the forms with you, multiple times, and you get asked the same questions about your name, date of birth, allergies and what procedure you are having.

All fairly standard protocol.

Now I have been through this D&C process 3 times, so I’m fairly familiar with the procedure and prepared for the questions they ask.

Except last fortnight, when I was just not prepared for the sheer stupidity and utter lack of sensitivity of this one particular Nurse.

I had been through the admission forms with 2 other nurses already that day, so I was pretty well rehearsed with my responses.

So, when this particular nurse went through the forms with me again just before I walked into the theatre, I wasn’t really expecting this conversation to go down.

About a minute before this conversation occurred she asked me to read out and confirm the procedure I was having…

“evacuation of retained products of conception” (yeah sure, it sucks to have to say it, but whatever I guess it’s just the process)

But anyway, the kicker of the conversation was this…

Nurse: “When was your last period?”
Me: “Ummm… I don’t really know, a couple of months ago…”
Nurse: “Please can you think of the date”
Me: “… Maybe around the 5th of March?”
Nurse: “Do you think there is a chance you could be pregnant?”
Me: *stares at nurse like she’s an idiot*
Nurse: *stares back at me, looking like she actually expects a response*
Me: “What do you think!?” (I don’t think I could really hold back the attitude in my voice)
Nurse: “Well… I have to ask, just in case, because you know, you could be”
Me: “I’m here for a D&C. I don’t know what else to tell you.”

I felt like saying “How about you go tell the Nurse Manager what you just asked me?” but the passive aggressive side of me just decided to send a nicely worded piece of feedback to the hospital once I was discharged instead… (I did actually receive a very nicely worded apology letter in response, from the Director of Nursing a few days later… reassuring me that the nurse had been spoken to and that this shouldn’t happen to any patients in the future, so at least that’s something).

Now, I don’t really want to finish on a negative note, so I thought I would share with you a rather bizarre conversation I had with a Doctor.

I did think it was quite funny at the time and it actually brightened my mood so much I burst out laughing, but I know not everyone in this situation would necessarily see it in the same way.

Anyway, this was back after I’d just had just had my second D&C and was all bundled up in a hospital bed where I had been wheeled back to my room from recovery after waking up from the anaesthetic.

My blood pressure was a bit low so the nurses were trying to fill me up with coffee to get it back up so they could finally discharge me.

In-between all that, the anaesthetist came over to check on how I was doing. I said I felt fine and that the nurses had said I could go once my blood pressure was back to normal.

He then looked at me and said, “Do you have any eggs left?”

I looked back at him (feeling slightly puzzled) and replied, “I’m only 30, so I certainly hope so…” 

He had a look of absolute horror on his face and I knew straight away what he meant.

He responded with “Oh I am SO SORRY. I thought you were doing IVF. Oh, my gosh, I really am sorry, and yes I am quite certain you still have many, many, MANY eggs left, so please don’t worry about that”.

I just looked at him and burst out laughing and told him not to worry about it… I think his funny comment actually kind of made my day.

So anyway, to wrap up, I know re-hashing weird and/or unhelpful comments probably isn’t helpful… but can I just offer a suggestion…

Perhaps if you’re not sure what to say when someone has had a miscarriage, just offer condolences, an “I’m sorry for your loss” will probably suffice in most instances.

If you have been in this situation before, I am sorry for your loss. If someone has said something weird, strange or just utterly bizarre to you, feel free to add your thoughts below…
 


Photo credit: Ammon Creative

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The Recovery Was Better Than Expected (Kind Of)

The Recovery Was Better Than Expected

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The Recovery Was Better Than Expected (Kind Of)

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The Recovery Was Better Than Expected (Kind Of)

Last week I set out on what I thought (at the time) was probably a slightly over-ambitious process to try and get myself looking and feeling “back to normal” in the aftermath of our third miscarriage.

I was feeling enthusiastic about my goal to pretty much just to eat healthy, get back into the gym, blast some of that extra belly I had been carrying around and generally just try to feel like myself again.

The week started out quite well, I managed to hit the gym each day and stick to a healthy eating plan (I even managed to stick to my goal of only eating fruit for snacks… which is a pretty big win for this chocolate lover!)

Then on Wednesday afternoon, I had a minor freak out which resulted in me being back in the hospital. At the time I was pretty stressed out, and the situation had me thinking my “back to normal” plan was flying out the window much faster than I had anticipated.

After being thoroughly checked out and, what felt like about a thousand rather intrusive tests done, the Doctor’s determined that I was fine and said I could go home (thank goodness!)

So, I went about my business trying to get back to “normal” sticking to my healthy eating and exercise plan.

I was starting to feel pretty excited about flying out to Broome first thing Monday morning, packing my bags and getting organised, when…

The hospital decided to call me on Sunday night (4 days after they discharged me!) to tell me that they decided I did have an infection after all and would I like antibiotics… ARGH! I’m silently screaming at them “No, I’m going away to drink cocktails tomorrow and DON’T YOU THINK YOU COULD HAVE WORKED THIS OUT 4 DAYS AGO!?”

But of course, I didn’t say that, I just said “No, not really, I feel fine now, so if it’s not a big deal I’d rather just skip the antibiotics, thanks.”

But today I thought better of it, and figured maybe I should just call my OB and see what he thinks.
*inward sigh thinking about allll those cocktails I’ve been visualising, sipping by the pool all week…”

So, I guess for now I might just have a sneaky cocktail, and hope my OB says everything is fine… fingers crossed.

But, anyway, all in all, I am pretty happy to say, I think my healthy eating and exercise plan worked quite well.

My tummy swelling went down quite a bit (it’s nowhere near where it was pre-pregnancy, but I am feeling much more like myself), and I got about 1kg closer to my pre-pregnancy weight, so it’s nice to know it can come off as quick as it goes on 😉

I did some experimenting with healthy breakfast recipe’s too, so I’ll share those a bit later in the week.

But until next then, you can find me sipping cocktails by the pool in Broome…

Cocktails by the Pool in Broome

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Don’t Talk About Termination

Don't Talk About Termination

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Don’t Talk About Termination

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Don’t Talk About Termination

Sam and I have been blogging about our experience towards (what we hope will eventually be) parenthood for a while now.

For all of our posts prior to this we have felt faily confident that many (or at least the majority) of people would be able to relate, or at least empathise with us at some level.

While a few of the topics in the past have not been easy for us to talk about, we are concerned with the controversy that this particular issue is likely to raise.

But, we don’t think we should shy away from talking about things just because they are difficult, or because we’re concerned that people might not agree with our views.

I always thought I had fairly set views on pregnancy termination.

I would say I’m pro-choice, in the sense that I think each scenario is unique to the parents who are living it, and it’s their choice as to what they think is the best thing to do at the time, and given their circumstances.

But I didn’t think I could ever personally entertain the idea of knowingly terminating a pregnancy myself.

That was until I learned there was a possibility of us going full term with a child who has severe disabilities.

Of course, one of the first things I did was look up what types of disabilities are possible with children who have unbalanced translocations.

There really is quite a range, but at the tricky end of the scale we’re talking inability to walk, talk, interact, on-going health problems, frequent to life-long hospital stays and extremely limited quality of life.

I read plenty of stories of parents who didn’t know that disability was a possibility for their child and went full term, and stories of parents who were fully aware of what was in store and had chosen to terminate.

There were also stories from parents who were pretty clear about saying that if they had the option to terminate before they knew what was in store for the child they would have terminated, as no-one would want that kind of life for a child.

Pregnancy termination is one of those tricky topics that everyone seems to have an opinion on, but no-one really wants to talk about.

I would really urge people to re-consider what they think about it, because I really don’t think you can fully comprehend what it means until you are in the situation where you have to make the decision yourself.

I said to Sam yesterday, that I’m probably more worried about what other people would think than anything else if we were in a situation where we were forced to make a decision about whether to terminate.

His response was to say that if we did make that decision at some stage that we could just tell people we had a miscarriage.

I agreed that would be an option, but I also think that there are probably millions of people out there that make the decision to terminate for some reason or other on a daily basis, and they probably don’t talk about it because of “what everyone thinks”.

It concerned me that we could possibly add to the stigma surrounding termination by keeping quiet about our decision.

So, we decided that if we are in the unfortunate situation where we decided to terminate that we would be open about it.

I figured there are probably a lot of other people in similar situations to us and they might seek comfort in the fact that they’re not alone in having to face such a traumatising scenario.

This is definitely not a decision a couple makes lightly.

From our point of view, we take into consideration quality of life for the child (including whether they will constantly be in pain and / or in need of medical care), resources required (equipment, medical resources, time and energy), costs (for resources, equipment, medical care etc) and burden to society (I know that might sound horrible but when it comes down to it, we’re talking about government allocation of funding, and what happens to the care of the child when we’re no longer around?).

From a slightly different angle, I am also mindful that having a child with such a severe disability could mean that we potentially may not go on to have more children, or alternatively if we did decide to have more children, should we consider what impact a sibling with a severe disablity would have to the lives of potential future healthy children?

Alternatively, what if we did know that the child had a severe disability, and went through with the pregnancy, what then happens if we decide to have more children, and the next child has a severe disability, and the next one after that? Would that affect our future decisions and how would we then feel about the decision to continue or to terminate the 2nd, 3rd, 4th… or so on?

I also hate to make this comparison, but I can’t help but think that if we were dealing with anything other than a human being, we would think it would be kinder to euthanise than see that living being suffer their entire lifetime. For some reason when it comes to human beings, people see things in a different way.

Another point Sam and I discussed were religious beliefs. We understand and respect that some religious views can make an impact on how people will feel towards a situation such as this.

We don’t follow a particular religion ourselves and while we respect everyone’s right to their own views and beliefs, we would hope that people also respect our right to choose our views and beliefs, even though these may not align with their own.

From our point of view, our preference is to do what we believe is right given the circumstances.

That is not to say that there are any “right” or “wrong” ways to look at a scenario such as this. I just think each scenario should be taken on its merits, and the parents decision accepted as reasonable, regardless of their situation or what they decide.

Personally, I couldn’t say exactly what I think we would or wouldn’t do, as I don’t think I’ll know for sure unless we’re in that situation (which I really hope we won’t be).

But if we are, I’d like to think that we’d choose the option we believed to be the kindest for the child, even if that meant choosing termination.

This is a really sensitive topic, so if you would like to comment please feel free to do so, but I ask that you be respectful, given that people will have mixed views and beliefs on this issue, and all thoughts and ideas are valid so long as they are not intended to dismiss or insult the thoughts or views of others.

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